This is the history for the submission "Motion by Bailie Ann Jenkins:- "Council notes with deep sorrow the tragic death of two-year-old Lyla Story in May 2025, who passed away from undiagnosed type 1 diabetes. Her symptoms, including excessive thirst, vomiting, lethargy and weight loss, were consistent with diabetic ketoacidosis (DKA), yet no diagnostic testing was carried out during her GP consultation. Council recognises that Lyla's case is not isolated. Across the UK, many children are diagnosed with type 1 diabetes only after reaching critical stages of DKA. This is despite the existence of clinical guidance from the National Institute for Health and Care Excellence (NICE), specifically Guideline NG18, which recommends same-day referral to a paediatric diabetes team when type 1 diabetes is suspected. Council further notes that the petition for Lyla's Law has received over 34,000 signatures on the UK Parliament website, reflecting strong public support for legislative change. While the petition is addressed to the UK Government, Council acknowledges that health policy and diagnostic protocols for children fall within the remit of the Scottish Government and NHS Scotland. Council supports the aims of the Lyla's Law campaign, which calls for: - Routine blood or urine testing for type 1 diabetes in children presenting with relevant symptoms. - Improved adherence to NICE NG18 guidelines by healthcare professionals. - Greater awareness of the "4Ts" symptoms: "Toilet", "Thirsty", "Tired", "Thinner". - Enhanced protection for non-verbal and very young children who cannot articulate their symptoms. Council therefore agrees to: 1. Ask the Chief Executive to write to the Cabinet Secretary for NHS Recovery, Health and Social Care, urging the Scottish Government to explore the feasibility of implementing Lyla's Law in Scotland. 2. Support the inclusion of type 1 diabetes symptom guidance in the Personal Child Health Record ("Red Book") issued to families. Council stands in solidarity with Lyla's family and campaigners, and to advocate for policy change that could prevent future avoidable deaths."".

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