Submission Documents: By Councillor Jon Molyneux:-
"Council notes that 17th May is World Neurofibromatosis (NF) Awareness Day and that NF is a group of genetic conditions caused by a mutation in one of the genes, the most prevalent of which is type 1 (NF1) which affects around 1 in 3,000 people.
Council further notes that its symptoms and their severity are varied and include visible and hidden neurofibromas (tumours of the nervous system which are not usually malignant), as well as being commonly associated with autism, ADHD, learning difficulties, scoliosis and other developmental issues.
Council congratulates everyone raising awareness of NF and commends the specialist and peer support available from NHSGGC via the Medical Genetics team at the Queen Elizabeth University Hospital, as well as from NF charities including the Neuro Foundation, Childhood Tumour Trust and Funny Lumps Scotland.
Council recognises that more can be done to raise awareness of NF among professionals working in health and social care, education and early years and commits to engaging with relevant organisations to understand how that can best be achieved." ![Click For Help Help Icon](images/gif/help.gif)
This is the list of documents available for the submission By Councillor Jon Molyneux:- "Council notes that 17th May is World Neurofibromatosis (NF) Awareness Day and that NF is a group of genetic conditions caused by a mutation in one of the genes, the most prevalent of which is type 1 (NF1) which affects around 1 in 3,000 people. Council further notes that its symptoms and their severity are varied and include visible and hidden neurofibromas (tumours of the nervous system which are not usually malignant), as well as being commonly associated with autism, ADHD, learning difficulties, scoliosis and other developmental issues. Council congratulates everyone raising awareness of NF and commends the specialist and peer support available from NHSGGC via the Medical Genetics team at the Queen Elizabeth University Hospital, as well as from NF charities including the Neuro Foundation, Childhood Tumour Trust and Funny Lumps Scotland. Council recognises that more can be done to raise awareness of NF among professionals working in health and social care, education and early years and commits to engaging with relevant organisations to understand how that can best be achieved.".
Click on the links to view the individual documents in PDF format.
Name | Type of Document | Access | View Document |
Item Minute - 17 May 2018 | Minute | Public |
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